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DCIS do I really need an AI?

Breast Cancer | Last Active: May 4 3:53pm | Replies (67)

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@windyshores

@marylnr there is definitely an Oncotype DCIS and with your high ER and positive PR, you should have one done. As long as you are HER2-.

My quality of life wasn't really affected by letrozole though I am usually sensitive to meds. Everyone is different. But you could try an AI.

Tamoxifen is not an AI but is an alternative for anyone very concerned about bones. I chose an AI despite osteoporosis. Tamoxifen is usually used for pre-menopausal patients.

I had a complicated situation and got 4 opinions! If you can get a second opinion or convince your docs to order the Oncotype, you will have more answers.

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Replies to "@marylnr there is definitely an Oncotype DCIS and with your high ER and positive PR, you..."

@windyshores I had a mastectomy 4 1/2 yrs ago and my oncologist never spoke about my taking Anastrozole and bone density affect. I do not think he even looked at my Dexa numbers. Of course I didn’t know about the affects Anastrozole had on bone density. Lo and behold after taking for a year, he says you have Osteoporosis when my current Dexa scan was forwarded to him. Doctors need to be more forthcoming with the side effects of medications they are doling out. I took Anastrozole for 2 1/2 yrs.
Also, my NEW oncologist ordered up an Onco test following my surgery (1+ yrs after) He told me he had wondered why surgeon or oncologist didn’t do one. I was surprised to learn they keep tissue for 7 yrs. My Onco score was low.