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New DIPNECH diagnosis, need advice on doctors

Neuroendocrine Tumors (NETs) | Last Active: 18 hours ago | Replies (36)
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@queengemini16

Hello,I have a 1.4 cm Typical Carcinoid Tumor n 10 DIPNECH nodules
1 is 5.5mm.
I read everything here n I'm very thankful.
My Surgeon only has had 5 cases n 1 case of DIPNECH.
I'M IM UPSTATE NEW YORK.
HELP IF U CAN,REGINA

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Replies to "Hello,I have a 1.4 cm Typical Carcinoid Tumor n 10 DIPNECH nodules 1 is 5.5mm. I..."
Zebra | @californiazebra | Jan 30 8:18pm

Hi @queengemini16

What is your surgeon’s and oncologist’s recommended course of action? Are you planning to seek out a second opinion from a NETs team? What other information are you looking for other than what you’ve read here in the DIPNECH threads on Mayo Connect?

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