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Multiple Sclerosis (MS) - please introduce yourself
Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)Comment receiving replies
I have ms & Lyme disease. I have several issues; my legs don’t work well (as stated above, I drag them around), I have neuropathy in both feet, my balance & stability are bad, I have a neurogenic bladder & bowel issues. I recently went to a new neurologist to get another opinion & she agreed with my current neurologist. Because I’m 67 & there hasn’t been any change in my lesions, since my diagnosis 20 years ago, there aren’t any medications that would be worth taking. The risk would be higher than the reward . There’s been disease progression, but no new lesions or changes. I recently tried gabapentin for the pain, but couldn’t tolerate 100mg & the dr said I’d probably have to take a much higher dose, to get relief. So, next we are trying lyrica. I’ve been using Capzasin cream, for the foot pain & it does help some. MS or Lyme, there’s no way to know. Any input would be appreciated. Thanks
Replies to "I have ms & Lyme disease. I have several issues; my legs don’t work well (as..."
Hi Pitou - I have tried gabapentin and pregabalin (Lyrica) for nerve pain with many side effects but you might consider trying Botox injections. Maybe you will tolerate it better and the Botox is supposed to stay localized although it didn't for me. You also mentioned Lyme disease and I remember having a blood test completed by an infectious disease specialist and it came back negative so that partially helped determine I had MS. Ask your doctor about it. I wish you all the best.
Hi Pitou - I thought I posted a response to you earlier but I don't see it. I have MS and have also taken gabapentin and Lyrica and had side effects from both. I recently tried Botox injections for the spasticity/nerve pain in my leg. It seems to worked well but there are some side effects - maybe you'll have better luck. Best wishes.
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Hi @pitou thanks If Lyrica doesn't work, try the generic version "Pregablin." My balance and stability aren't great. Additionally, there are other neuro issues. Maybe something like Hydroxyzine may help the itch associated with the neuropathy (if and only if itching is involved). Wishing you continued blessings!