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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)
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@heather9167

Hi.I have a spinal cord disorder called Arachnoiditis. No cure and very rare. Pain Specialist aren't familiar with it. So I tell them about. So they prescribe me meds. Well if they don't know what they are treating. How can u truly give them the proper medication for this disease. So any advice?

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Replies to "Hi.I have a spinal cord disorder called Arachnoiditis. No cure and very rare. Pain Specialist aren't..."
danny67 | @danny5 | Jan 30 6:04pm

i agree. but, to be honest with you, i'm glad they are giving you some type of pain med. i hope. cause most doctors now are afraid to do that. and then you suffer. i have a Herniated disc. my doctor only suggests PT. HUH? or a muscle relaxant. i wonder how that helps with the bones. 🤷‍♂️🤷‍♂️

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Sophie46 | @sophie46 | Jan 31 11:32am

I too have Adhesive Arachnoiditis. I am sorry you have this painful disease. To treat the pain I went to a pain specialist, which was helpful.

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Justin McClanahan, Moderator | @JustinMcClanahan | Feb 2 10:30am

Hello @heather9167, I combined your discussion with an existing discussion titled, "Arachnoiditis: Looking to talk with others" - https://connect.mayoclinic.org/discussion/arachnoiditis/

Here are a few more discussions you may find relevant as well:
Epidural to relieve arachnoiditis pain, https://connect.mayoclinic.org/discussion/epidural-to-relieve-arachnoiditis-pain/
Arachnoiditis: Trying to find a specialist, https://connect.mayoclinic.org/discussion/i-am-looking-for-a-doctor-in-nc-that-treats-patients-arachnoiditis/

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