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dmedina71 (@dmedina71)

Looking for others with Pituitary Adenoma

Brain Tumor | Last Active: Jun 6, 2021 | Replies (77)

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Hi, @ladydove417 I hope this email finds you well. I was reading what you wrote. My husband I was diagnosed with Pituitary Adenoma,Also look like he was starting to have Cushings Syndrome,after 5 years and many test,my husband did his surgery. First thing I will tell you is Never settle for 1 opinion, I took my husband 3 Neurologist,2 endocrinologist. Until we found perfect doctors I dont know where you live but where I live we have University Of Miami (UHEALTH). Sometimes you need to go some place else to get better opinion,but if you cant . I will give you his doctors name and maybe you can find doctor in your area that are similar like my husbands. I will tell you keep a binder all report,and CDs all your labs,MRi,Cat Scan, anything you have done. All medications given also. His endocrinologits is Dr Atil Kargi and his Dr Ronald Benveniste neurologist surgeon. My husband had high blood pressure, he was gaining weight,swelling around his stomach,headaches,he even started have visual problems,and sugar was trying to turn to diabetes. It is a very hard process,lots of emotions. I will tell you this my husband was complaining dull headaches so I made 1 appoinment with regular neurologist and he told him and I was there "so you can stop crying and whinning,I'll send you for a cat scan,because you are to young to have anything'. Oh boy when the result came in,he didn't know how to talk to us or look at us. We new what the result was prior ro him telling us because we had picked up copy of the results and before he said anything I was already looking for another doctor. Please dont lose hope,you need to stay persistant and if a doctor tells you have nothing and you feel uncertain get another opinion. I know some insurance makes it hard but you need to talk to them and unfortunately have to pay out your own pocket. I send you hugs and prayers.My last advice is look for God and let him guide you and leave your worries to him and he will come thru for you,like my husband did and my children and I are very grateful,because my husband is with us today.

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Replies to "Hi, @ladydove417 I hope this email finds you well. I was reading what you wrote. My..."

Thank you so much for the words of encouragement. I'm glad your husband was able to find resolution and I'm sure he's grateful that you were there to help him through it all. It gets tiresome but I won't give up. I just did my siliva test last night and will start looking for another team of doctors to get a second opinion.

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