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Abdominal swelling/bloating after a double mastectomy

Breast Cancer | Last Active: Mar 11 1:22pm | Replies (82)

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@babs25

I had an OT appt this morning and I asked her if someone wanted to explore possibility of abdominal lymphodema what would you suggest. She said find an OT that is CLT (certified lymphodema therapist) make an appt for an evaluation & if they determine treatment is necessary the OT would send their finding to the patients Dr and she said she also has the patient contact either phone, email or if they have a mychart send message through that - to confirm you had an appt with OT and she was going to contact your office. The OT needs a Dr order for treatment and some just give it without seeing patient others, like mine, wanted to see me and rule out other possible reasons for my extended stomach. I will also let you know that when the decision to purchase my own pump & garment - the rep from the company selling the items needed my Dr contact info for insurance purposes... you'd need a prescription or order if using insurance. They handled all of that so that was nice. Like I mentioned before I purchased my without insurance as my garment required the newest pump & insurance would only cover the smaller pump which was not compatible with my garment - so I paid the without insurance amount. Any issues I have had my rep is very responsive too. And for me purchasing one for myself in long run will save me money by eliminating the 2 appts I would have each week to use the pump at my OT's office. Again the results are amazing - and I'm so glad that I asked my PT about the distended stomach - because she had OT come in - decided to make an appt with her and so glad I did! I hope you find relief - there are many massage therapist that are trained and certified in Lymphatic drainage so that's another great option. Take care.

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Replies to "I had an OT appt this morning and I asked her if someone wanted to explore..."

Thank you so much for taking the time to answer. I am familiar with the procedure and Dr referral because I did have it done for my arm. I may well go back through that again, but thought if there was a piece of equipment I could obtain, I might be able to avoid it. Many thanks!

How much did the machine cost? (Hope it's ok to ask!)