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Pancreatic Cancer Group: Introduce yourself and connect with others

Pancreatic Cancer | Last Active: 13 hours ago | Replies (1375)
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@weezi

Hell o everyone. I’ve been looking for group to join and happy I found this great site!

I count my blessings everyday that I reported white stool to my PCP who then ordered CT and a small cyst was found in the head of my pancreas.

Because my sister and grandfather had pancreatic cancer and an uncle with bile duct cancer, they followed me closely.
1 year after finding the 7 mm cyst an MRI was done and cyst was unchanged but was on main duct.
2 1/2 months later an EGD sono showed the cyst had grown to 10.1 mm.
On 5/13/2022 had a Whipple for suspicious main duct cyst which was found to have dysplasia!
I was fortunate to have to have a surgeon following me that averages 60 Whipples a year.
I tell everyone I can that we know our bodies and if you notice something unusual, call your PCP!!!
I’ll be 2 years post op and feel good except for some gas problems, abdomen cramps, with BM urgency but usually gone by late morning.
Good to hear what foods are better post Whipple. That was lacking by dieticians at hospital. There doesn’t seem to be a good recommendation.

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Replies to "Hell o everyone. I’ve been looking for group to join and happy I found this great..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 31 9:29am

Hello @weezi and welcome to Mayo Connect. I'm also glad that you found this support group and I appreciate you sharing your experiences with everyone on this forum.

I certainly applaud you for being so proactive about your care. It really is important as you said, "...that we know our bodies and if you notice something unusual, call your PCP!!!" That is the best way to become our own patient advocate.

I am glad to hear that you are feeling good now. I understand that the side effects from digestive tract surgery can be ongoing. I've had three surgeries of the upper digestive tract, and it takes a lot of trial and error to find foods that trigger symptoms. It's not an easy task. Have you considered keeping a food, exercise journal to see if there are any food, drinks or activities that increase your symptoms?

I was able to meet with a hospital dietician and her suggestions worked well for me. I hope that you are able to find some more guidance on an eating plan that might help with some of these symptoms.

Have you asked about a referral to a dietician since your surgery?

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