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dmedina71 (@dmedina71)

Looking for others with Pituitary Adenoma

Brain Tumor | Last Active: Jun 6, 2021 | Replies (77)

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@upartist

Hello, I am responding to others with pituitary adenomas. My grandmother, her dad, and my daughter all had benign macro pituitary adenomas. My grandmother and her dad both passed away as a result of the tumor growth. With the advancements in medical science, my daughter’s was successfully removed, and she is past the 15 year mark. She was young and we had an intuitive local family practice Doc who did his residency at the Mayo Clinic in Rochester. He looked at her and saw more than what logic dictated. We have been blessed! She has needed no supplemental hormone therapy and is doing well. I don’t have to describe to the group of people on this blog how stressful and devastating this condition can be to all parties involved. The waiting portion was the worst, for all of us. Once the tumor was removed, we were able to move forward. However, not all macro adenomas are created equal. We all know that. The different treatment options definitely vary according to the type, size, effects and direction of the growth, and the health of the individual. Anyone who has been diagnosed with a pituitary adenoma, micro or macro, of any type, should go to a center which specializes in this treatment. The diagnostic tools are imperative to reach a conclusive refined diagnosis and then an appropriate treatment plan. These include targeted blood work, imaging, physician team, and comprehensive patient education. The patient receives a group judgement with a lot of experience tossed into the decision making. It’s very helpful to have knowledge on your side. I hope this helps anyone who is struggling with this condition. You can have a positive outcome in many different ways.
Respectfully,
UPArtist

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Replies to "Hello, I am responding to others with pituitary adenomas. My grandmother, her dad, and my daughter..."

I am sorry about the passing of your grandmother. I was dx with a microadenoma about 10 years ago. Needless I was surprised and concerned about it. They found the tumor after I had fallen. They did an mri. I have been under a neurosurgeons care sinbce then and have had two mri,s. They showed no advancement as of two years ago. My dr has not recommended surgery so far. I have not been concerned about the tumor since the dx. However, I have fatigue, weigh 120 lbs. and somretimes experience blurriness. Also, I was treated for severe hyponatremia. I think it would be wise to take your advise and look for a tumor center. Thank yo

@torino1qm If you wish to consider a second opinion from experts at Mayo Clinic, please call any of our 3 campuses, http://mayocl.in/1mtmR63. You will be offered an appointment within 48 hours Be sure to mention the Brain Tumor 48-access program. They can help you navigate your healthcare journey and answer your questions about treatment options.

How much is an appointment? I don’t have medical insurance.

Hi @dailychronicsupportgroup, You can get information about cost from the appointments department. Please call the contact number on this page http://mayocl.in/1mtmR63. You can talk to them about your medical history and options available at Mayo Clinic. It is our goal to provide the best care each patient needs. But as you know there are also travel costs, etc. We do not want to have you incur additional costs for evaluation or travel if the care we can offer is not different from what you’re already receiving.

Thank you for sharing

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