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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)
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@semurrey

Thinking of you and totally understand - have you been diagnosed with ILC? I'm assuming you've had biopsy showing ILC and then you also have clumps of cysts etc. I too have many cysts and density so I requested alternating 6months mammo and MRI. One year post lumpectomy and radiation for 1.8cm ILC right breast my 3D mammo is new baseline. I will have mammo in April - I hear ya on surveillance - very stressful but will be my norm.
Keep us posted. xoxo

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Replies to "Thinking of you and totally understand - have you been diagnosed with ILC? I'm assuming you've..."
sedonadreaming | @sedonadreaming | Jan 30 1:31pm

Yes. ILC with large clump of cysts nearby in R. Breast. Hoping for same surveillance routine as you with alternating MRI/ 3D mammogram or U/S. Guess I will find out down the line. Gotta get the cancer out first 🙂 Hoping for a solid plan by week’s end. I decided that SMX w/immediate R. DIEP and contralateral augmentation ( lift/fat graft) is where I am finding peace. I see the one surgeon in a.m. and have abd./pelvis CT in PM for plastics. Positive thoughts. 😉

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kstar077 | @kstar077 | Feb 2 9:03am

Had 11mm 12:30 6cm from nipple ILC left breast cancer. Did not show up on mammo missed on ultra sound. I felt myself in left breast. Immediately did manmo .did not show up again. Had ultrasound with me pointing to rock feeling lump. Had core biopsy. Had mri which showed it perfectly. Had lumpectomy. Margins clear. Lymph nodes clear. No radiation. No chemo. My testing and blood did not warrant. No hormone blocker meds. 4% chance cancer comes back after having hormone blocker for five years and radiation. 8% chance coming back without radiation and hormone blocker meds for 5 years. 92% chance cancer not coming back . I am thin and have osteo penia. With hormone blocker i will probably get osteoporosis. Had hystectomy. 1 year prior to breast cancer So no hormones from ovaries. Mammo did not show ILC so having ultra sounds of breast in may. And mri bilateral in July 1 year out from last mri. Apparently mammo does not show cobweb ILC. Thank God I found my cancer myself. I felt it. I am going to have ultra sound and mri from now on. You have to be your own advocate .

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