Stage 4 Metatasized to Bones- Anyone at 10 years?

Posted by cal77 @cal77, Dec 30, 2023

For an otherwise healthy male, are there those of you that are still around for 10 years? I'm recently diagnosed and at 7 months...my Urologist said I have maybe 4 years, but then I see others out there are still around at 10 years...Is everyone different?

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melcanada | @melcanada | Jan 28 3:10pm

In reply to @melcanada "Look also at Lu 177" + (show)

Fucj Try it anyway

hbp | @hbp | Jan 28 4:52pm

Plan for 4 years hope for 10 years. It is somewhat imprecise. Good Luck. I got the same project toons 30 months ago

retireddoc | @retireddoc | Jan 29 8:01am

In reply to @koji480 "The oncologists that I now see don't give estimates as all cases, to some extent at..." + (show)

Good for you! Love to hear that story. Johns Hopkins individualizes treatment and is on the cutting edge. I had vey limited metastatic disease and had Chemo, radiation to T8 and pelvis, Darolutamide and ADT for one year. PSA undetectable. MY JH MO plans to follow PSA and when (if!) gets to 0.1, image with PSMA PET and radiate any detectable mets +/- 3 months of ADT. Sounds like a plan. At initial consult he said I should only consider MO/Medical Centers that individualize treatment.

melcanada | @melcanada | Jan 30 7:20am

I start first one minute injection Wednesday Radium 233
https://www.healthline.com/health/prostate-cancer/radium-223-for-prostate-cancer

melcanada | @melcanada | Jan 30 7:30am

In reply to @retireddoc "Good for you! Love to hear that story. Johns Hopkins individualizes treatment and is on the..." + (show)

https://www.healthline.com/health/prostate-cancer-prognosis-life-expectancy-bone-metastases?slot_pos=article_3&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=cancercare&utm_content=2024-01-30&utm_term=s:hl_n:cancercare&apid=&rvid=bb1eae2f35916c1f0f383cc46053ca8a110a0657e125948dea0d990208a5d64d

baxterlee77 | @baxterlee77 | Jan 30 7:36am

In reply to @melcanada "Chemo will help much Pray Precious blood of Jesus heal me" + (show)

Thanku and god bless him 🙏

melcanada | @melcanada | Jan 30 9:08am

In reply to @melcanada "Look also at Lu 177" + (show)

Thank you first one minute injection of Radium 133 tomorrow at CVH

Radium 223 for Prostate Cancer: Benefits and Side Effects (healthline.com)
https://www.cancerresearchuk.org/about-cancer/prostate-cancer/metastatic-cancer/treatment/radiotherapy/radium-223#How%20You%20Have%20Radium%20223

melcanada | @melcanada | Jan 31 7:44am

In reply to @melcanada "I start first one minute injection Wednesday Radium 233 https://www.healthline.com/health/prostate-cancer/radium-223-for-prostate-cancer" + (show)

Just took the injection Easy no side affects

melcanada | @melcanada | Feb 5 5:22am

In reply to @coping123 "Everyone IS different. My husband is 14 yrs out from diagnosis. Metastasis to bones started a..." + (show)

Get on Radium 223 No side effects Zyofigo 6 injections 4 weeks apart takes 5 minutes and go home
https://www.healthline.com/health/prostate-cancer/radium-223-for-prostate-cancer#procedure

coping123 | @coping123 | Feb 5 6:20pm

In reply to @melcanada "Get on Radium 223 No side effects Zyofigo 6 injections 4 weeks apart takes 5 minutes..." + (show)

My husband is currently on this regimen. He’s thru 4 of the 6. It is palliative only for him - intended to reduce the size of the tumors to prevent spontaneous fractures & thereby improve quality of life. The cost - covered by VA - is $50,000. per infusion. I did some research & found just the vial of the Radium is almost $30,000. The balance is the associated costs. I don’t know what folks without insurance coverage do.