1. < Osteoporosis & Bone Health

Evenity and heart

Posted by windyshores @windyshores, Dec 25, 2023

Has anyone had a fast or irregular heart beat after Evenity? I am going to have the injection tomorrow. Recently both COVID and Paxlovid caused rapid and irregular heart beat so I am feeling vulnerable. Thanks!

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susanfalcon52 | @susanfalcon52 | Dec 28, 2023
In reply to @windyshores "@susanfalcon52 the Evenity reaction did not affect my heart at all. I want to be really..." + (show)
@windyshores

@susanfalcon52 the Evenity reaction did not affect my heart at all. I want to be really clear on this. The chest pressure was not my heart!

I woke at 1am and the chest pressure was gone as were the prickly sensations in hands.

This was not a reaction to Evenity, in my opinion. It was a reaction to polysorbate20, a minor ingredient that I am sensitive to. I have NOT had any tachycardia or arrythmias. I don't want to unnecessarily scare anyone and am sorry if I was unclear.

If I do, over the next month, I will post but my recent COVID also had an effect on heart rhythms.

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Got it. Glad you are able to continue with Evenity.

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pedsnurse61 | @pedsnurse61 | Dec 28, 2023
In reply to @lashu "Did you go to another medication to stabilize any gains you made with Evenity? My Endocrinologist..." + (show)
@lashu

Did you go to another medication to stabilize any gains you made with Evenity? My Endocrinologist says I will go on Reclast after Evenity to stabilize the gains. Or, to prevent regressing to the point I was at at the beginning.

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I am presently taking Fosimax. Not sure how long I will continue to take it. Unfortunately I had no improvement (gains) with taking 5 months of Evenity. But I wasn't surprised at all, I am very unusual ( rare) that have taken 4 other medications with no improvements in my DEXA numbers. I will continue to walk everyday, practice yoga, take my supplements, eat healthy and be hopeful that I will continue not to have a fall or compression fracture. I wish everyone on this site better success than I had. We all need to support each other and be hopeful.

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8fish | @8fish | Jan 28 12:35am
In reply to @windyshores "@sedrake51 if I had read this last night or early this morning I would have cancelled!..." + (show)
@windyshores

@sedrake51 if I had read this last night or early this morning I would have cancelled! We'll see what happens. I already had paroxysmal afib and my recent COVID affected my heart.

What did you do after Evenity>

I have already done Tymlos for two years and Reclast can have side effects like palpitations or afib, according to some studies, though more recent info would seem to say less risk according to my doc. I just want to lock in my gains!

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@windyshores Could Fosamax be used to lock in your gains? You would of course have to take it much longer than the one-time Reclast Infusion, but it might be safer for your heart to take the oral bisphosphonate. Has your doctor ever suggested that path?

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1 reply
windyshores | @windyshores | Jan 28 6:20am
In reply to @8fish "@windyshores Could Fosamax be used to lock in your gains? You would of course have to..." + (show)
@8fish

@windyshores Could Fosamax be used to lock in your gains? You would of course have to take it much longer than the one-time Reclast Infusion, but it might be safer for your heart to take the oral bisphosphonate. Has your doctor ever suggested that path?

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I have bad Gerd @8fish and could not tolerate Foasamaz. I am doing a low dose of Reclast but more frequently. If I cannot do that, especially if my kidneys react, I will try Actonel. Thank you!

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3 replies
susanfalcon52 | @susanfalcon52 | Jan 29 6:22am
In reply to @windyshores "I have bad Gerd @8fish and could not tolerate Foasamaz. I am doing a low dose..." + (show)
@windyshores

I have bad Gerd @8fish and could not tolerate Foasamaz. I am doing a low dose of Reclast but more frequently. If I cannot do that, especially if my kidneys react, I will try Actonel. Thank you!

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windyshores,
When do you start Reclast?
No more Evenity? I know that you have posted about this. It just seems as if it’s happened so fast.

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1 reply
windyshores | @windyshores | Jan 29 7:05am
In reply to @susanfalcon52 "windyshores, When do you start Reclast? No more Evenity? I know that you have posted about..." + (show)
@susanfalcon52

windyshores,
When do you start Reclast?
No more Evenity? I know that you have posted about this. It just seems as if it’s happened so fast.

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@susanfalcon52 I have one more provider to meet with. Right now I am inclined to risk another set of Evenity injections. I had hope to do at least 3 because that is when the most bone growth happens. Then Reclast.

My side effect of abdominal pressure has eased, It was worst for 4 days after the shots and has gradually diminished. Allergist gave me some helpful advice: thigh shots, not tummy, pause between shots, stay in office 15+ minutes and hydrate too.

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2 replies
sausalito | @sausalito | Jan 29 3:00pm
In reply to @windyshores "I have bad Gerd @8fish and could not tolerate Foasamaz. I am doing a low dose..." + (show)
@windyshores

I have bad Gerd @8fish and could not tolerate Foasamaz. I am doing a low dose of Reclast but more frequently. If I cannot do that, especially if my kidneys react, I will try Actonel. Thank you!

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HI! My doctor said there was no low dose of Reclast infusion: So I am wondering how your dose was adjusted.

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2 replies
njhornung | @normahorn | Jan 29 5:24pm
In reply to @sausalito "HI! My doctor said there was no low dose of Reclast infusion: So I am wondering..." + (show)
@sausalito

HI! My doctor said there was no low dose of Reclast infusion: So I am wondering how your dose was adjusted.

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From https://www.pdr.net/drug-information/?drug=reclast

Obviously, we are over 1 7 but there is more than one dosage available.

"Children and Adolescents 3 to 17 years
5 mg IV once yearly, or alternatively, 0.05 to 0.1 mg/kg/dose IV once every 6 months or 0.05 mg/kg/dose IV once daily for 2 consecutive days every 4 months."

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susanfalcon52 | @susanfalcon52 | Jan 30 6:09am
In reply to @windyshores "@susanfalcon52 I have one more provider to meet with. Right now I am inclined to risk..." + (show)
@windyshores

@susanfalcon52 I have one more provider to meet with. Right now I am inclined to risk another set of Evenity injections. I had hope to do at least 3 because that is when the most bone growth happens. Then Reclast.

My side effect of abdominal pressure has eased, It was worst for 4 days after the shots and has gradually diminished. Allergist gave me some helpful advice: thigh shots, not tummy, pause between shots, stay in office 15+ minutes and hydrate too.

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windyshores,
Perhaps the second and third doses will be easier. The only reaction I have had was to first shots.

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windyshores | @windyshores | Jan 30 7:02am
In reply to @sausalito "HI! My doctor said there was no low dose of Reclast infusion: So I am wondering..." + (show)
@sausalito

HI! My doctor said there was no low dose of Reclast infusion: So I am wondering how your dose was adjusted.

Jump to this post

They just give 1 mg instead of 5. Not sure why your doctor said that. It is not common though. I am getting lower dose only because of kidney issues.

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