@claudia72 ironically, I live in Phoenix and have access to Barrows, and Mayo. I also have a neurologist…My situation is the result of a very rare autoimmune disease. It damaged my nerves so I have Polyneuropathy.
I also experience pain on my head, and it is from occipital neuralgia (the nerves under the scalp are inflamed).
The brain MRIs I have had show medium atrophy in my cerebellum so they say that I have early dementia.
That atrophy has caused a rare condition called Ataxia.
Acquired Ataxia results in a loss of balance, coordination, and other “fun” things…I must use a walker now.

I wanted an appointment with Mayo to discuss treatment options and compare them with what I have been receiving.