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Small vessel ischemic white matter disease

Brain & Nervous System | Last Active: Feb 1 7:23am | Replies (39)

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@claudia72

PKH- I am happy to share or try to answer any questions you might have. First, I need to make sure you understand that I don't really have a clear diagnosis yet. In my toes, when it's bad, it can feel like a burning sensation, like I am just not feeling my toes in the same way as I used to. Its tolerable but annoying. As an example, I first noticed something was different when my toes just felt different on the tiled floor of the shower. Not really painful or pins & needles-just different. And then I started having the burning sensation. So intense I would just soak my feet in cold water, which really seemed to help. When I take a bath I notice my toes don't seem to like the hot water-same when I go to the gym and sit in the hot tub. It seems to vary in intensity and sensation. Sometimes I get a burning sharp pain on the top of my foot-but that is more rare. The stabbing pain in my head is on the upper right top/back area. It happens so fast and then it is gone. I don't know if my eyes have been jumping around but again, it happens so quickly. I did have a longer episode when sick with the flu earlier this month. I would estimate it lasted about 20 seconds. My husband was there when it occurred and it really scare him. It was much more intense. And then it was gone! Hope this helps you somehow. I have another doctors appt. today so away I must go! Blessings and healing your way.

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Replies to "PKH- I am happy to share or try to answer any questions you might have. First,..."

Thank you Claudia72 for your kindness in responding to my message. I am sorry for your burning sensation in your toes. I am sure it is concerning to you and can be an aggravation. My PN affects both my feet/legs from just under the knee down. I have several problems with them and I must take a lot of medication to try to get some relief. It started out by tingling and numbness and then proceeded to sharp pains and burning sensaation. I feel like I am walking on an uncomfortable sandy beach all the time when walking. I have a neurological body movement which affects my balalnce and walking, so the PN really affects those problems in a negative way. Again, I appreciate you taking the time and effort to respond to me and I wish you the very best in your health journey. ❤️
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