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Is anyone on Capecitabine for pancreatic cancer?

Pancreatic Cancer | Last Active: Mar 26 3:16pm | Replies (19)
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@waltsocal

thanks again everyone for providing so much useful information.

I've tried to do a lot of research on CA19 results. I'm not having much luck. What I want to understand is if my number is 200 , 400 or 4,000 do the numbers represent a magnitude of the cancer in my body, or how rapidly it is growing.

Most of the things I find just reference the "direction" the number is going and how that says if things are getting better or worse?

Could someone enlighten me 🙂

Thank you so much for everyone's thoughts on so many different subjects.

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Replies to "thanks again everyone for providing so much useful information. I've tried to do a lot of..."
patti303 | @patti303 | Jan 30 12:00pm

CA19-9 is a protein shed by some cancers. Other cancers have other protein markers (my friend gets a CA25 test). A small percentage of people (myself included) never have CA19-9 reading above average (for example: Lab range is < 3 to 32> and my highest was 20 and now is 7 or lower depending on the testing lab -- methods vary). Some CA19-9 numbers can get quite high. So if yours are showing out of range, it may be something they may or may not find valuable to monitor.

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marienewland | @mnewland99 | Feb 1 2:58pm

Hello Waltsocal,
I have an unknown variant on atm gene. My ca prior to removal of my stage 2 pancreatic cancer was 91, prior to 5Fu chemo it was 8, by end of 12 cycles if 5FU (June 15,2023) it was 6. In Nov 2023 it got up to 223 and in January 2024 it was 3840. I’m now receiving the gem/abraxane/cis chemo and after 3 treatments I’m down to 2120. In my case, and my current UCLA oncologist agrees, ca19-9 is a good indicator of the pancreatic cancer progression. I wish you luck in your journey.

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