← Return to Parotid gland tumor. Will need surgery. Your experience at Mayo?

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@trainwife

Sue - did you have facial paralysis (no smile or slanted smile) post surgery? Did you have plastic surgery or facial reanimation surgery done to correct this? Dr. Moore said it would take one year for the nerves to reconnect. I was curious to know what happens after the 12 months. Does your smile just activate or is surgery needed?

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Replies to "Sue - did you have facial paralysis (no smile or slanted smile) post surgery? Did you..."

Catherine, I had tumor involvement in the facial nerve so a section had to be removed. I had total right side facial paralysis when I woke up from surgery. By anastomosing the ends back together during the initial surgery, my paralysis was starting to improve with increased muscle tone 5 months after surgery. By 9 months I could really start to tell that there was improvement. Nerve tissue is very slow to heal and you need patience. It is a very slow process of regaining control of muscles that had atrophied. Then there is an issue with synkinesis where the nerves healing together are not exactly the same as it was initially. So now certain muscles have different control.....like attempting to raise the eyebrow might cause the corner of my mouth to twitch. I feel that the brain figures this out slowly and I do facial muscle exercises to help. I will never be able to raise my eyebrow but I had a plastic surgery to elevate the brow. My facial appearance will never be like before surgery, but I am amazed by little improvements I still see 12 years later. Spending time outside in cold weather makes my facial muscles very stiff and slow to respond. This is just a part of the new normal, and better than being dead from cancer. I would certainly recommend a life saving surgery even though the risk of facial paralysis is there. I won't sugar coat it, it takes some real motivation to get back to your life during facial paralysis, but knowing it is temporary and there will be gradual improvement is what has gotten me though.