← Return to Treatment for MAC

Discussion

Treatment for MAC

MAC & Bronchiectasis | Last Active: Feb 5 5:54pm | Replies (50)

Comment receiving replies
@irene5

Since you are intolerant to that MAC med, and I am so very sorry about that eye complication, see if you can get inhaled Arikayce. Your MAC is coming from the dirt. You have apparently the genetic makeup to get MAC. You should (no matter how hard it may be), wear an N95 mask. Your MAC will unfortunately keep increasing which will ultimately cause serious respiratory disease. Arikayce will kill the MAC , but you will have to continue to avoid getting it again- hence the N95’s. If you don’t care then don’t worry about it. You may be a lucky one and just die with MAC but not from MAC. Clearly I have no crystal ball, but your wonderful annd noble occupation of farming ( which I have a huge amount of respect for) is where you got MAC. That was the first question asked of me years ago- Did I live or work on a farm or have contact with birds? If you do nothing medically at all at least start wearing a mask. Irene5

Jump to this post


Replies to "Since you are intolerant to that MAC med, and I am so very sorry about that..."

Hi what are side effects of Arikayce? I wear a mask when I am tilling the dirt or dusty conditions,the Dr said to wet it down when possible. I am one of those that have no symptoms.I do not have enough “ stuff” for a culture.So frustrating

Irene, please explain further your comment about birds. I have a bird feeder but have never heard that birds can be a source of MAC contamination. I have MAC now and am on the Big 3 and I surely don’t want to do anything to be reinfected.