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ER positive breast ca preventative hysterectomy

Posted by positivity1 @positivity1, Jan 15 5:44am

48 perimenopausal estrogen postive breast ca. Co.pleted radiation and now told to take lupron and tamoxifen. Im thinking of habubg full hysterectomy jnstead of taking lupron and piece of mind not getting ovarian.cerival, uterine ca if all is removed. Im not having sucess finding any stats on this. Anyone go this route?

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Jan 28 10:32am
In reply to @sarahmh "Oh, you are so right about the long-term effects of any of our treatments. I pray,..." + (show)
@sarahmh

Oh, you are so right about the long-term effects of any of our treatments. I pray, take a deep breath, and do what my trusted onc recommends (I still do tons of my own looking into things, mostly because it’s interesting, but I’m not a doctor and my oncologist is wonderful and experienced and happy to talk to me about my questions and concerns). At the end of the day, I’d rather suffer the consequences of action rather than inaction. Hugs to all 🤗

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I agree, like you I felt that I might have consequences down the line from treatments (I most certainly do, 20 years from original diagnosis) but I was in my 30s young and strong and I wasn’t ready to not fight for my life.
I had the oopherectomy, and took the tamoxifen, then I took the AI as well.
I am not aging as well as I had hoped, but I have had 20 years to whine about it. 20 years with my husband and my family, and living the best life I can every day. I do wish that I had been given more information, as someone posted on another conversation, this learn as you go, isn’t the best.
My only advice is get as much information as you can, make the best decision you can, then be at peace with it. We all have different choices to make and different reasons for choosing them.
Have you decided what treatments you will take?

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sarahmh | @sarahmh | Jan 29 7:36am
In reply to @auntieoakley "I agree, like you I felt that I might have consequences down the line from treatments..." + (show)
@auntieoakley

I agree, like you I felt that I might have consequences down the line from treatments (I most certainly do, 20 years from original diagnosis) but I was in my 30s young and strong and I wasn’t ready to not fight for my life.
I had the oopherectomy, and took the tamoxifen, then I took the AI as well.
I am not aging as well as I had hoped, but I have had 20 years to whine about it. 20 years with my husband and my family, and living the best life I can every day. I do wish that I had been given more information, as someone posted on another conversation, this learn as you go, isn’t the best.
My only advice is get as much information as you can, make the best decision you can, then be at peace with it. We all have different choices to make and different reasons for choosing them.
Have you decided what treatments you will take?

Jump to this post

Oh, we threw everything at it. My oncologist stresses that I'm at high risk of recurrence (but also not to worry because we've done all we can). I was 45 at diagnosis, 48 now. I had IDC with DCIS, stage 2A, 2.5cm tumor, HR+ HER2-, grade 3, one of four nodes positive, Oncotype score 20. So I've had a lumpectomy and sentinel lymph node biopsy, 4 rounds of TC chemo, 33 radiation treatments (28 whole breast/axillary lymph nodes and 5 "boost" to the tumor location). Now Zoladex to shut down my ovaries, exemestane and Verzenio. Alternating MRI and mammogram every six months. Looks good so far! The only thing I haven't done that my onc has suggested is the oophorectomy instead of Zoladex. I honestly don't know why I'm so hesitant to do it! Probably because I feel pretty great and everything is going so well that I'm afraid to mess with anything!

You are so right, we all have different choices to make and different reasons for making them. I'm actually reminded of breastfeeding! I am strongly pro-breastfeeding, but good golly, I would never, ever feel like I have the right to judge anyone who bottle feeds! Everyone's situation is different. But like you also said, informed decisions are best, and I looked into everything my docs suggested (and asked them a million questions) before agreeing to anything. Not because I think I know more than they do, but just for my own peace of mind!

Life is beautiful, even when it's hard. Hugs!

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