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Small vessel ischemic white matter disease
Brain & Nervous System | Last Active: Feb 1 7:23am | Replies (39)Comment receiving replies
In reply to claudia72, I am curious. I, too, have small vessel ischemic white matter disease plus other neurological issues. You mentioned that you have PN in toes-both feet. Were you told that this was related to the white matter disease? I have PN both feet/calves and just wondered because no one has ever made that connection for me. Also, regarding the sharp, stabbing pain in your head, same spot, can you tell me where that spot is? I get the same thing, and it is getting worse, in the R temporal area. Do you have related painful sensitivity to touch in that area after the stabbing pains subside? Does it ever feel swollen in that area, like it could possibly be a vein or something? I had an episode one time in front of a Dr specialist for an entirely different thing, but she witnessed me having the episode and said that my eyes were "jumping around". Has this ever been an involvement for you? Sorry for all the questions, but it's hard to find anyone who has experenced the same symptoms as I have had and just trying to gather more information. Your help would be greatly appreciated.
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Replies to "In reply to claudia72, I am curious. I, too, have small vessel ischemic white matter disease..."
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PKH- I am happy to share or try to answer any questions you might have. First, I need to make sure you understand that I don't really have a clear diagnosis yet. In my toes, when it's bad, it can feel like a burning sensation, like I am just not feeling my toes in the same way as I used to. Its tolerable but annoying. As an example, I first noticed something was different when my toes just felt different on the tiled floor of the shower. Not really painful or pins & needles-just different. And then I started having the burning sensation. So intense I would just soak my feet in cold water, which really seemed to help. When I take a bath I notice my toes don't seem to like the hot water-same when I go to the gym and sit in the hot tub. It seems to vary in intensity and sensation. Sometimes I get a burning sharp pain on the top of my foot-but that is more rare. The stabbing pain in my head is on the upper right top/back area. It happens so fast and then it is gone. I don't know if my eyes have been jumping around but again, it happens so quickly. I did have a longer episode when sick with the flu earlier this month. I would estimate it lasted about 20 seconds. My husband was there when it occurred and it really scare him. It was much more intense. And then it was gone! Hope this helps you somehow. I have another doctors appt. today so away I must go! Blessings and healing your way.