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Small vessel ischemic white matter disease

Brain & Nervous System | Last Active: Feb 1 7:23am | Replies (39)

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@claudia72

Susan, thanks for the encouraging words. Yes, I have researched much today on white matter disease. The problem is that I have peripheral neuropathy in my toes-both feet, been going on for about 2 1/2 - 3 years. It started after I got the 3rd covid shot (first booster) and I have been getting sharp, stabbing pains in my head- same spot. Only lasts a couple of seconds and is very random. Sometimes I get nothing like that for weeks or even months, then zap! It’s the weirdest thing. And I am constantly fatigued, which for me isn’t normal as I spent 34 years in wildfire management & before that I studied ballet and modern dance… I am
very active but getting less so as of late. Something isn’t right and my doctor is suggesting possible MS. But you are right- stressing over it, is not going to be helpful. I have a 13 mm lesion so, really I am dumbfounded! Will
Continue to try and educate myself with information from only legitimate sites like the Mayo. Sorry for my lengthy replies! Gotta try and sleep now so I hope you have a good nights rest. 😴

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Replies to "Susan, thanks for the encouraging words. Yes, I have researched much today on white matter disease...."

In reply to claudia72, I am curious. I, too, have small vessel ischemic white matter disease plus other neurological issues. You mentioned that you have PN in toes-both feet. Were you told that this was related to the white matter disease? I have PN both feet/calves and just wondered because no one has ever made that connection for me. Also, regarding the sharp, stabbing pain in your head, same spot, can you tell me where that spot is? I get the same thing, and it is getting worse, in the R temporal area. Do you have related painful sensitivity to touch in that area after the stabbing pains subside? Does it ever feel swollen in that area, like it could possibly be a vein or something? I had an episode one time in front of a Dr specialist for an entirely different thing, but she witnessed me having the episode and said that my eyes were "jumping around". Has this ever been an involvement for you? Sorry for all the questions, but it's hard to find anyone who has experenced the same symptoms as I have had and just trying to gather more information. Your help would be greatly appreciated.
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