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Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
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@lynn99

Thanks Roger and Traci. My PET scan was good which was a big relief. My nose is healing and neck incisions. I start radiation treatments on Wednesday, 25 treatments. 5 weeks will go fast, right?? lol. Roger, good to hear you are working out again. I’m trying to walk outside everyday. It helps with my mood too. Love when I can walk in the woods. Were you able to do any exercise during your treatments? My energy isn’t what it was before all of this. What helped with the mouth side effects for you? Thanks for your support.

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Replies to "Thanks Roger and Traci. My PET scan was good which was a big relief. My nose..."
rogermcintire | @rogermcintire | Jan 29 8:59am

Hey Lynn, great news regarding your PET scan, I know that is a big relief!
I will have you in my prayers during the 25 radiation treatments. The sessions are not pleasant but tolerable and yes, they do go by quickly. I promise you will meet some great folks as you go through the process.
My side effects such as sore throat and tongue didn't really start until just after the 9th treatment. Your medical caregivers will tell you how to deal with the effects. One medication they prescribed for me was Gabapentin 300mg just before bedtime. This helped with any pain and I think helps me sleep. I also used Magic Mouthwash (prescription required) which really helped with the mouth soreness.
I was somewhat fatigued during the treatment period but not really too bad, I walked my dog but didn't do the hard workouts maybe I was just slacking off. lol
The loss of taste has resulted in me losing weight because I can't taste anything. Eating is a challenge. So today and tomorrow eat up my friend and especially your favorite foods! By the way I am drinking the energy drinks with high protein.
Lynn you definitely have my support and prayers as you go through these procedures. Keep in touch and may God bless you and give you peace!

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