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had my first appt

Gynecologic Cancers | Last Active: Feb 29 7:08am | Replies (47)

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@sullycat

wishing you the best for your upcoming treatment. Sharing my experience. I had the chemo/surgery/chemo protocol with carboplatin and Paxcitel in 2022. I was full of fluid which is not uncommon for later stage ovarian cancer, so the first procedure was draining my ascites-filled abdomen (I forget what that procedure is called right now) and sending off to pathology with multiple ct scans prior to surgery. I was warned before surgery that the surgeon would not know what had to be removed until they opened me up (very similar to the warning you received about the possibilities of bowel resection as well as removal of all the reproductive organs and the omentum). I ended up with the full hysterectomy, bilateral salpingo oopharectomy, and they removed the visible tumor from my omentum and removed my appendix. I did not have to have a bowel resection. I found the uncertainty about what they were going to take out pretty stressful, balanced with the hope that the surgeon could remove as much as possible during the debulking procedure. I spent about a week in the hospital and left with the same instructions as @naturegirl5. While not the most fun I have had, they controlled the pain well and I made a slow but steady recovery. I was grateful that I even was able to have the surgery since that was not a guarantee. I am stage IIIB high grade serous and BRCA 1 positive. Assuming you will get the genetic testing too as part of your treatment to help with your treatment plan.

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Replies to "wishing you the best for your upcoming treatment. Sharing my experience. I had the chemo/surgery/chemo protocol..."

Welcome, @sullycat. So helpful to hear your story.

Are you currently on any treatment? How are you doing today?