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Is anyone on Capecitabine for pancreatic cancer?

Pancreatic Cancer | Last Active: Mar 26 3:16pm | Replies (19)
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@altc321

I was wondering why the change after 12 cycles of chemo (fulfurinox) to radiation treatment. Was this a result of a CT scan or normal planned treatment?
I just completed 13 chemo treatments of Gemzar/Abraxane with declining CA-19 until the last two blood tests which indicated a leveling off at approximately 225 also a slight thickening of my pancreatic mass from the last scan. My oncologist mentioned some radiation treatment may be next with the inclusion of 500 mg of capcitabine, twice daily, during the radiation treatments. He would plan to continue the same chemo regiment following the radiation treatments.
Thank you for your post…. it has been very helpful. My very best to you.

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Replies to "I was wondering why the change after 12 cycles of chemo (fulfurinox) to radiation treatment. Was..."
stevm | @stevm | Jan 29 8:38am

The plan from the start of treatment had been 12 cycles of folfurinox followed by 28 days of chemo(capecitabine)/radiation. I had a distal pancreatectomy and splenectomy in May 2023. My CA19 was 57 prior to surgery and 15 three weeks after. It has been in the 8-11 range throughout treatment and scans have been clean. Now that I’m finished treatment it’s wait and see. Next scans and bloodwork scheduled for the first week of March. Hoping for the best. Good luck to you and everyone else on this journey we wish we didn’t have to be on.

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waltsocal | @waltsocal | Jan 29 10:46am

thanks again everyone for providing so much useful information.

I've tried to do a lot of research on CA19 results. I'm not having much luck. What I want to understand is if my number is 200 , 400 or 4,000 do the numbers represent a magnitude of the cancer in my body, or how rapidly it is growing.

Most of the things I find just reference the "direction" the number is going and how that says if things are getting better or worse?

Could someone enlighten me 🙂

Thank you so much for everyone's thoughts on so many different subjects.

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