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Abdominal swelling/bloating after a double mastectomy

Breast Cancer | Last Active: Mar 11 1:22pm | Replies (82)

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@timely

Ok.
I have been going to a lymphedema PT.

I was told that I have breast lymphedema. I had a lumpectomy of left breast and 2 sentinel nodes taken out.

I have swelling of left breast and swelling at left armpit.
I have 2 folds of skin above the belly button.
Step one:
1)She has me doing massage at armpit across chest 2)?at area of ribs below bra and then 3) at area above stomach.

Then I massage the breast and pull lymph fluid from bottom quadrants up and over to right armpit. Then pull lymph fluid from top of breast directly across to right armpit.
Then I do the sets again in step one.

She told me to massage lymph down at the end from left armpit to groin only at end. Did not say how many strokes.

Meanwhile when I am done, my entire right side is swollen with all the lymph and straight side with no waist line.
She did not say to massage right side at the end at all and has never heard of this problem with someone with only lumpectomy and sentinel node removal.

Her only idea to me before I see her this week is to just massage the left breast downward straight down to
the groin until I see her this week and to do just that…..
1) I only did this one time as I could not even get breast all drained doing this and armpit was still puffy and stomach still puffy.

Her only other idea is to get the vest.
She is planning on measuring my arm again even though she measured it last week.
Doctor says that I do not have breast lymphedema.
Arm measurements have changed very slightly.
She is also pushing for me to wear a sleeve even though I have no arm lymphedema and she says that I do not either.
Read that one should not wear one if you do not have arm lymphedema as it could cause arm lymphedema.

Do you think that I should even see her again or get another PT for a 2nd opinion?

Or just ask her to go over the massage with me to make sure that I am doing it properly? Otherwise, appointment time is just measuring time.

Is it possible with arrhythmias that the normal lymph is not working properly to drain lymph on right side at end of massage?
Can manually move the lymph collection down the side on the right if I do that.

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Replies to "Ok. I have been going to a lymphedema PT. I was told that I have breast..."

Typo correction: Breast surgeon says that I have breast lymphedema. But no arm lymphedema.