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ER positive breast ca preventative hysterectomy
Breast Cancer | Last Active: Jan 29 7:36am | Replies (12)Comment receiving replies
I agree, like you I felt that I might have consequences down the line from treatments (I most certainly do, 20 years from original diagnosis) but I was in my 30s young and strong and I wasn’t ready to not fight for my life.
I had the oopherectomy, and took the tamoxifen, then I took the AI as well.
I am not aging as well as I had hoped, but I have had 20 years to whine about it. 20 years with my husband and my family, and living the best life I can every day. I do wish that I had been given more information, as someone posted on another conversation, this learn as you go, isn’t the best.
My only advice is get as much information as you can, make the best decision you can, then be at peace with it. We all have different choices to make and different reasons for choosing them.
Have you decided what treatments you will take?
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Oh, we threw everything at it. My oncologist stresses that I'm at high risk of recurrence (but also not to worry because we've done all we can). I was 45 at diagnosis, 48 now. I had IDC with DCIS, stage 2A, 2.5cm tumor, HR+ HER2-, grade 3, one of four nodes positive, Oncotype score 20. So I've had a lumpectomy and sentinel lymph node biopsy, 4 rounds of TC chemo, 33 radiation treatments (28 whole breast/axillary lymph nodes and 5 "boost" to the tumor location). Now Zoladex to shut down my ovaries, exemestane and Verzenio. Alternating MRI and mammogram every six months. Looks good so far! The only thing I haven't done that my onc has suggested is the oophorectomy instead of Zoladex. I honestly don't know why I'm so hesitant to do it! Probably because I feel pretty great and everything is going so well that I'm afraid to mess with anything!
You are so right, we all have different choices to make and different reasons for making them. I'm actually reminded of breastfeeding! I am strongly pro-breastfeeding, but good golly, I would never, ever feel like I have the right to judge anyone who bottle feeds! Everyone's situation is different. But like you also said, informed decisions are best, and I looked into everything my docs suggested (and asked them a million questions) before agreeing to anything. Not because I think I know more than they do, but just for my own peace of mind!
Life is beautiful, even when it's hard. Hugs!