Hi @mtnmom
Im sorry you’re going through this. How frustrating to have to wait that long for an appointment! Perhaps there is another endocrinologist that could see you sooner?
In the meantime, has your primary doctor conducted a 72 hour fasting test? This is apparently the “gold standard” for diagnosing Insulinoma. Here’s a paragraph from the NIH explaining it:

In adults with symptoms of neuroglycopenia or documented low blood glucose levels, the gold standard for biochemical diagnosis remains measurement of plasma glucose, insulin, C-peptide, and proinsulin during a 72-h fast (Table 1). This prolonged fasting test can detect up to 99% of insulinomas[39].

Unfortunately, most net specialists won’t see you until you have been diagnosed with a net. However, Mayo would be an excellent starting point with an endocrinologist who, if Insulinoma is confirmed, can then hook you up with a net specialist. The same can be said for any institution with a net specialist in its network.

Best of luck to you!