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Your Thoughts on a Foundation for Small-Fiber and Autonomic Neuropathy
Neuropathy | Last Active: Feb 7 10:51am | Replies (22)Comment receiving replies
Hi, I'm very interested to know more about the LDN you are taking. I want to ask my doctor to prescribe it to me because I read another comment from someone who was having success with it. I can't stand the pain I have and no one is doing anything to help me. I'm on 100mg gabapentin and I would like to wean off because I don't think it is helping. Higher dose gave me very bad side affects. If you are having even a reduced amount of pain from the LDN, can you share please what amount you are taking and started with? Thank you.
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I started on 1.5 for a week, but I had heart palpitations at first so I was taken off it for a week and then started back again. A week after that I started 3 MG. Again had problems but it disappeared after a day or so. I went up to 4.5 mg. Loved the feeling mind wise! Great joy. Heart wise I had to stop after two days. Went back to 3 mg. The next I increased was 0.5 MG. I stayed at that for 2 weeks before increasing another 0.5. Had problem again the first day or so. Right now I am at 4.0. I want to get to 4.5 the target dose but I am going to stay at current level for 3 or 4 weeks before increasing. My reactions to meds are abnormal to say the least. I have an allergy list a mile long. I did notice the 2or 3 days I was at 4.5 pain relief but really noticed it when I was told to get off it for a week. That's when I noticed how bad the pain really was. I get use to a certain amount of pain and it was a surprise how bad it was! I am having pain relief at 4 mg but would like to make it to 4.5.