I suffered from undiagnosed mals for 17 years. I had every gi test and sometimes twice. I’m so very thankful for this site as it lead me to Mals Awareness Facebook group. It’s easy to find information and ask questions. I also self diagnosed myself through information and researching. It lead me to a doctor who, 4 years ago, was one of the few doctors who treated mals. My vascular doctor told me he had done three with not much success, so I chose to go across the country to a doctor, who at that time had done over 300 with great successes. I was in so much pain, narcotics didn’t touch it. I had lost 30 pounds and was continuing to do so. My husband and I chose to have open surgery and I knew upon waking from surgery that the mals pain was gone. It took 7-8 months of recovery. I do have a lot of residual problems because it took 17 years to find a diagnosis, but I’m so thankful for the support and encouragement I get from others who have been down this long, lonely road. Just some advice, get checked for mals, nutcracker, pots, Elder Danlos and smas because correcting mals can sometimes cause other vascular compressions to show up. I’m so sorry you’re going through this. Hugs!