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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 2 days ago | Replies (1146)

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I suffered from undiagnosed mals for 17 years. I had every gi test and sometimes twice. I’m so very thankful for this site as it lead me to Mals Awareness Facebook group. It’s easy to find information and ask questions. I also self diagnosed myself through information and researching. It lead me to a doctor who, 4 years ago, was one of the few doctors who treated mals. My vascular doctor told me he had done three with not much success, so I chose to go across the country to a doctor, who at that time had done over 300 with great successes. I was in so much pain, narcotics didn’t touch it. I had lost 30 pounds and was continuing to do so. My husband and I chose to have open surgery and I knew upon waking from surgery that the mals pain was gone. It took 7-8 months of recovery. I do have a lot of residual problems because it took 17 years to find a diagnosis, but I’m so thankful for the support and encouragement I get from others who have been down this long, lonely road. Just some advice, get checked for mals, nutcracker, pots, Elder Danlos and smas because correcting mals can sometimes cause other vascular compressions to show up. I’m so sorry you’re going through this. Hugs!

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Replies to "I suffered from undiagnosed mals for 17 years. I had every gi test and sometimes twice...."

Have you looked at MALS PALS page, another great FB page.
I'm so sorry you are going thru all this.
I'm in my second month recovery of open surgery and doing ok but slower recovering then I wanted. ❤️
My surgery was also tough, but I can eat again. Still some days I feel like MALS pain is back, but I think its more incisional pain. Atleast I'm hoping. 🙏🙏 This is my second MALS surgery. I have also had over 40 tests and procedures. I am so done with anything else, so I'm praying nothing else occurs. I return to my surgeon in Ohio next month and he'll do another ultrasound to see how things are. Good Luck and hope you have continued success! ❤️