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Treatment for MAC

MAC & Bronchiectasis | Last Active: Feb 5 5:54pm | Replies (50)

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@animasgirl

I was on the Big 3 due to my immune compromised state due to cancer treatment. I thought my eyeglasses were dirty until I suddenly could not read the Netflix descriptions on the tv. I immediately stopped the meds .One group of doctors said they didn’t see any problems so I went to another group and was told that my optic nerve was not smoothe as it should be.They wanted me to go to the hospital immediately and get I’ve steroids. I chose time instead ,as I read that the only difference would be the amount of time it would take for your eyes to heal as much as they would either way. I experienced color blindness,cloudy sight,could not drive for 5 months. I now am driving ,different light can have an effect on my sight ,glasses are definitely needed for reading. But I am ok ,I can function with the sight that returned. My last scan showed that MAC has increased and I have no symptoms….I have so many questions and to top this all off I am an organic farmer,small farm but always in the dirt.

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Replies to "I was on the Big 3 due to my immune compromised state due to cancer treatment...."

Since you are intolerant to that MAC med, and I am so very sorry about that eye complication, see if you can get inhaled Arikayce. Your MAC is coming from the dirt. You have apparently the genetic makeup to get MAC. You should (no matter how hard it may be), wear an N95 mask. Your MAC will unfortunately keep increasing which will ultimately cause serious respiratory disease. Arikayce will kill the MAC , but you will have to continue to avoid getting it again- hence the N95’s. If you don’t care then don’t worry about it. You may be a lucky one and just die with MAC but not from MAC. Clearly I have no crystal ball, but your wonderful annd noble occupation of farming ( which I have a huge amount of respect for) is where you got MAC. That was the first question asked of me years ago- Did I live or work on a farm or have contact with birds? If you do nothing medically at all at least start wearing a mask. Irene5