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Does anyone else have neuropathy?

MAC & Bronchiectasis | Last Active: Feb 10 12:58pm | Replies (29)
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@rbl

I am so glad to see this post, I also have tingling and numbness in my toes. I can’t seem to find shoes that are comfortable and I have achy ankles, knees and hips. It was worse when I was on levequin but it’s still bothersome. I mentioned to my dr. It might be from ethambutol and she said she didn’t think so. I only have 4 month left so she wants to keep me on the ethambutol.

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Replies to "I am so glad to see this post, I also have tingling and numbness in my..."
diane47 | @diane47 | Jan 28 1:59pm

I like the shoes in the Cosy Feet catalogue.

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lvalenti | @lvalenti | Jan 29 5:51am

I had the same issues and was told it wasn’t the ethambutol causing the problems but neuropathy is a known side effect of that medicine and I’m convinced that’s what caused mine.

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lauraadam2425 | @lauraadam2425 | Jan 29 5:41pm

I have numbness in my feet, leg pain and swelling in both legs. I had a wellness check last month and they suggested that I get a new Neurologist and get tested again for Neuropathy even thought the first test said I was negative. I was on the big 3 for 14 months then taken off ethambutol for failing 3 field eye tests. the symptoms are getting worse even thought I have been off ethambutol for 9 months. They have now added Arikacye to the list.

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