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Surgery for MAC

MAC & Bronchiectasis | Last Active: Jan 30 7:44pm | Replies (28)

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@jessicamc

I went to Europe 6/23. Came home with RSV & Aspergillus. Hospitalized 7 days. Took the med for Aspergillus 42 days. Was sent to a pulmonologist to see if lung was clear. Sent for PET, possible tumor. Opted for Mayo in Jax. I’ve been going there for annual checkups since Mayo diagnosed bronchiestasis. I don’t have it as bad as many people do. Manage it with mucinex. Had biopsy 10/23. 4 lymph nodes clear, but sample tested for typical neuroendocrine carcinoid. Very very slow growing. Robotic surgery 01/10/24. Sent home the next day. Follow up was told the suspect tumor was not a tumor, it was a granuloma that lite up in the PET. There were a few tiny carcinoid tumors near it. Only lost about 10% of lung. No sign of Aspergillus hanging on. Told not to worry about the little tumors, come back in a year for checkup. I’m 77, walk an indoor track at the Y, do a few machines. Finally hired someone to take care of my flowerbeds to avoid Aspergillus. I’m not going on anymore international flights, because 2 trips to Europe came home with miserable lung infections.
All my life when I would get ill, no dr ever said bronchiectasis. So many PA’s, NP’s, & some GP’s never heard or considered it.
I’m so grateful I went to Mayo.

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Replies to "I went to Europe 6/23. Came home with RSV & Aspergillus. Hospitalized 7 days. Took the..."

As I turn 65 and retiring finally, I've crossed out all long travel destinations by airline or boat off my bucket list. I got nailed with a bad case of covid my last flight. I guess I can survive between Colorado and Gulf Shores.

Thank you I am thinking of visiting France and Italy this summer. So, I need to be careful. I hope you are feeling a lot better. May I know what was robotic surgery like? Was it VAT? My pulmonologist told me that down the road, we might need to consider due to chronic infections, and mucus production. I'm nervous though. I'm 53. My bronchiectasis started out as mild but now between mild and moderate most on my right middle lobe. Due to chronic infection, I produce yellow/green mucus every day.