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Meningioma: Anyone else? I'm frightened
Brain Tumor | Last Active: 22 hours ago | Replies (523)Comment receiving replies
Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare the damage to my optic nerve and vision. It had grown wrapped around my optic nerve sheath, so the doctors wouldn’t even biopsy it, much less perform surgery to remove it. I ended up undergoing 28 daily radiation treatments to kill the tumor. It did not restore my vision, but it is not currently growing. For reference, I was 55 when diagnosed.
Replies to "Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare..."
I was just diagnosed with a meningioma brain tumor last week. I'm freaking out a little. I saw that you had trouble with you vision. My vision has gotten really bad really fast. I don't know if were the same but can you describe what you see. I can't see at night. All the lights look like fire works. Its awful and pretty at the same time. My memory is also bad. I can't remember the name of things. And sometimes I lose my train of thought at the end of a sentence. I'm scared too
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Hi, sorry to hear about your vision. My doctors keep telling me that my meningioma is tiny and is taking the wait and see approach. I'm a little nervous about knowing it's there and it could cause problems. I know my vision has changed and have to wear stronger glasses all the time. I guess I'll just wait and keep an eye on it. I also have a pituitary adenoma that I am watching. Glad to hear it is not growing!