Hi diane47, Yes I have neuropathy in both legs, It is worse in the left. Mine is also from Ethambutol. I was on that drug, and 2 other oral ones for 18 months. Also, on 2 IV drugs 2 times a day, 3 times a week, for 9 months.
Hard to say which drug did the damage, but Ethambutol is notorious for doing that.
I had 2 mycrobacteria infections at the time, so the drug was kept in place. I guess lesser of the 2 evils.
I have been off them 15 years now. I have numbness, and pins and needles in left leg. I don't use a cane as I can still feeling in feet I am very careful when and where I walk. I have a burning sensation in my foot and calf often and a strange feeling like humming. Not that I can hear, it just has a hum feeling to it. If I walk too much it gets bad, painfully so. I had emg testing for weeks. Never changed.
I now have MAC, not treated. I'm hoping it never needs treating! I have bad allergies to most drugs that are used for MAC.