Stage 4 Metatasized to Bones- Anyone at 10 years?

Posted by cal77 @cal77, Dec 30, 2023

For an otherwise healthy male, are there those of you that are still around for 10 years? I'm recently diagnosed and at 7 months...my Urologist said I have maybe 4 years, but then I see others out there are still around at 10 years...Is everyone different?

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@baxterlee77

How is his pain now?

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He has had zero pain from the metastases all these years. After the Zytiga stopped working, and the cancer spread to several spinal spots at once this fall, he began to have mild, intermittent back pain, but it isn't clear if the pain is due to the cancer. He just had his first Pluvicto treatment, so it is too soon to know its effect on the metastases and whether it will improve the pain.

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@lag

He has had zero pain from the metastases all these years. After the Zytiga stopped working, and the cancer spread to several spinal spots at once this fall, he began to have mild, intermittent back pain, but it isn't clear if the pain is due to the cancer. He just had his first Pluvicto treatment, so it is too soon to know its effect on the metastases and whether it will improve the pain.

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Got results today ! All over his spine lumbar ! Thoracic ! And cervical ! Clivus not good ! We are sad 😞 they want him to do chemo for 6 months ! They told him if not he would have only months left ! Has anyone had this comment about life ? Thanku sandi and Russ 🙏

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In reply to @baxterlee77 "Is it in Mn ?" + (show)
@baxterlee77

Is it in Mn ?

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Google it and lu 177

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@baxterlee77

Got results today ! All over his spine lumbar ! Thoracic ! And cervical ! Clivus not good ! We are sad 😞 they want him to do chemo for 6 months ! They told him if not he would have only months left ! Has anyone had this comment about life ? Thanku sandi and Russ 🙏

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No doc should say how long If only in bones get on Radium 233 one minute injection for 6 months 4 weeks apart No hair loss minimal effects Bone scan at end Usr Zolodrx shots ND Xgeva and take 600 calcium daily Then do chemotherapy if 233 not killing cancer cells only Google this stuff If spread is more than bones get Lu 177 injections for 6 months pray Precious blood of Jesus heal me

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The oncologists that I now see don't give estimates as all cases, to some extent at least, are individual. The first one I saw, who practices at a major medical center, gave me five years max. I decided to seek help at another major medical center for a second opinion. I am also getting consultations at Memorial Sloan Kettering Cancer Center in New York. (I have seen the studies that show that patients getting treatment at NIH-recognized cancer centers tend to have better outcomes.)
If I make it to August, and I believe I will, I will have five years since diagnoses of advanced prostate cancer. My two latest PSMA PET scans, including one this month, are not able to detect the cancer cells in spite of a rising PSA, likely because they are still too small. Hopefully when they become detectable, they will be treatable. This brings home the importance of aggressive monitoring of your condition.
BTW, I had my prostate removed, had salvage radiation and was on ADT for two years. My PSA went from 54 to undetectable until this time last year, when it started rising. I am 71 years old.

Warm regards,
Daniel
State of Washington

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In reply to @baxterlee77 "Is it in Mn ?" + (show)
@baxterlee77

Is it in Mn ?

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Ask oncologist certain hospitals have it one day a week

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@koji480

The oncologists that I now see don't give estimates as all cases, to some extent at least, are individual. The first one I saw, who practices at a major medical center, gave me five years max. I decided to seek help at another major medical center for a second opinion. I am also getting consultations at Memorial Sloan Kettering Cancer Center in New York. (I have seen the studies that show that patients getting treatment at NIH-recognized cancer centers tend to have better outcomes.)
If I make it to August, and I believe I will, I will have five years since diagnoses of advanced prostate cancer. My two latest PSMA PET scans, including one this month, are not able to detect the cancer cells in spite of a rising PSA, likely because they are still too small. Hopefully when they become detectable, they will be treatable. This brings home the importance of aggressive monitoring of your condition.
BTW, I had my prostate removed, had salvage radiation and was on ADT for two years. My PSA went from 54 to undetectable until this time last year, when it started rising. I am 71 years old.

Warm regards,
Daniel
State of Washington

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Koji. Thanks for your post. You are a fighter and an inspiration. Many guys, me included, are in the same situation as you. I think that the doctors are intentionally very conservative when giving life expectancy opinions. They urge guys to put their affairs in order, financially and family wise. Also, when we exceed the doctors projections then no one complains, but if we don’t make it to the projections, then family members ( and sometimes the patient ) will complain. Best of luck to you and all of us here!

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@melcanada

Ask oncologist certain hospitals have it one day a week

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We talked to the dr Russ has it spread so bad that it won’t help at the moment! They are starting chemo on Tuesday ! It’s everywhere in the bone ! I’m so sad 😞🙏

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@baxterlee77

We talked to the dr Russ has it spread so bad that it won’t help at the moment! They are starting chemo on Tuesday ! It’s everywhere in the bone ! I’m so sad 😞🙏

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Look also at Lu 177

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@melcanada

Look also at Lu 177

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Chemo will help much

Pray Precious blood of Jesus heal me

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