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Temporal Arteritis, PMR, RA

Autoimmune Diseases | Last Active: Feb 4 3:41pm | Replies (22)

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@beaver

Hello everyone,
I can’t begin to tell you all how important being able to communicate with you has meant to me. I don’t know if any of you have experienced the apathy from friends that I have, but being able to talk to someone, anyone, about my situation is a blessing. In fact, after reading some of your stories, I’m thinking I’m in pretty good shape~for the shape I’m in!
I’m fortunate to have been completely off of all meds, including prednisone, from 2015 to 2020, when GCA flared and then was diagnosed with PMR, now RA. I’m at 4 mg. Prednisone now, but my sed rate is inching up so that may change. I have a standing appointment at the lab for every 4 to 6 weeks. My decision now is what to do about the RA. For the last three days I’ve been almost pain free, but I know that won’t last long.
Talking into you all has allayed my fears of biologics; I’ve pretty much ruled out methotrexate due to my GI issues. At 81 years old, I have to decide now how I want to spend the rest of my life with the time I have left.
Beaver

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Replies to "Hello everyone, I can’t begin to tell you all how important being able to communicate with..."

So good to read about people with same issues! Battling with prednisone down to 6 and hope it will
Be o k . Taking acterma injections also. So challenging

Hi everyone,
Since my last message, I feel I now have to make a decision regarding what meds I should take. I was feeling quite good~no RA pain in my hands or wrists for almost a week, and PMR pain minimal.Last night it all came back with a vengeance. Sooo, should it be methotrexate, Kevzara, or Actemra. Pros and cons please on these meds.
Beaver