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Surgery for MAC

MAC & Bronchiectasis | Last Active: Jan 30 7:44pm | Replies (28)

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@rstel7272

By the time I got my PET, the nodule in question dramatically shrunk in size (over 3 weeks) but the lymph nodes showed an uptake. Months later I had a SuperDimension bronchoscopy that confirmed it was aspergillus. I guess you never know what these test will show?

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Replies to "By the time I got my PET, the nodule in question dramatically shrunk in size (over..."

Apparently!

I went to Europe 6/23. Came home with RSV & Aspergillus. Hospitalized 7 days. Took the med for Aspergillus 42 days. Was sent to a pulmonologist to see if lung was clear. Sent for PET, possible tumor. Opted for Mayo in Jax. I’ve been going there for annual checkups since Mayo diagnosed bronchiestasis. I don’t have it as bad as many people do. Manage it with mucinex. Had biopsy 10/23. 4 lymph nodes clear, but sample tested for typical neuroendocrine carcinoid. Very very slow growing. Robotic surgery 01/10/24. Sent home the next day. Follow up was told the suspect tumor was not a tumor, it was a granuloma that lite up in the PET. There were a few tiny carcinoid tumors near it. Only lost about 10% of lung. No sign of Aspergillus hanging on. Told not to worry about the little tumors, come back in a year for checkup. I’m 77, walk an indoor track at the Y, do a few machines. Finally hired someone to take care of my flowerbeds to avoid Aspergillus. I’m not going on anymore international flights, because 2 trips to Europe came home with miserable lung infections.
All my life when I would get ill, no dr ever said bronchiectasis. So many PA’s, NP’s, & some GP’s never heard or considered it.
I’m so grateful I went to Mayo.