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Weaning

Epilepsy & Seizures | Last Active: Feb 3 8:24am | Replies (10)

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@emilyjjj

We are not sure if these are real auras or not. It’ll just be tgat she experiences a smell or her ear hurts and she thinks about seizures. She’s 12 and has been on a very small amount of Keppra for four years. We are doing an extremely slow wean (.1 ml drop every two weeks) for about 5 months. My question is could the wean process itself be making her feel weird things but it doesn’t mean her seizures are returning? Her Dr recommended the wean bec 80 percent of kids or something grow out of benign Rolandic seizures. Before starting Keppra her leg was possibly involved in one seizure but we believe all others were limited to one side of her face.

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Replies to "We are not sure if these are real auras or not. It’ll just be tgat she..."

Hi @emilyjjj
Thank you for the additional information you have shared with us.
Great that the weaning-off process has been carried out with time and care.
When younger my seizures would start with a taste in my mouth and smell in my nose, learning later that this was the aura.
Have you reported those symptoms to your daughter's doctor? I would talk to him or her before giving continuity to more decreases in your daughter's Keppra dosage.
Wishing that your daughter stays off meds and without seizures!
Chris (Santosha)