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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@neveragainvaccines

I have twitching in both calves and sometimes thighs and butt. IDK how they come to conclusion that it’s benign. I most likely have long covid. Started 5 months after my infection with burning and PEM and the the twitching started (daily). I’ve had a brain MRI that shows innumerable white matter hyper intensities that neurologist initially said can’t say for sure what this is, the next Appt blamed it on hypertension, was dismissive and gave me a Benzo too. I was so angry. The fact is whatever I have is progressive and has been blown off. Just want to hand me Gabapentin and other drugs. How bout start with a diagnosis first ! Bad medicine. The only thing that helps is hot baths or heat pads.

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Replies to "I have twitching in both calves and sometimes thighs and butt. IDK how they come to..."

In my benzodiazepine support group, muscle twitching is extremely common, and the latest world held organization guidelines say, do not take benzos for more than 2 to 4 weeks. Many of us in this benzo group have been on them for many years, some decades. Muscle twitching is extremely common in this group, so I’m not sure taking a benzo would Make things worse. Also, when this all started, my doctor took me off of gabapentin as he said that it causes all kinds of neurological weird symptoms. Good luck.