Replies to I have not been on Afinitor but experience the same breathless, weak symptoms as you describe….

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Neuroendocrine Tumors (NETs) | Last Active: Feb 11 7:10am | Replies (33)

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@normaf9

I have not been on Afinitor but experience the same breathless, weak symptoms as you describe. Diagnosed in 2017 and had experienced the weakness two or three years prior. Possibly the serotonin secreted from cancer causes these side effects. SSAs help some.

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Replies to "I have not been on Afinitor but experience the same breathless, weak symptoms as you describe...."

sophiarose | @sophiarose | Jan 27 11:22am

The strange thing is after my liver resection was done in 2019 I no longer had any carcinoid symptoms not even when my cancer returned
Anyway I am off Afinitor until my cardiologist gives me the ok to start back up
I will keep the site updated
Thank you

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