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Dialysis - Stories and Questions

Kidney & Bladder | Last Active: Nov 7 5:37pm | Replies (44)

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@gingerw

Two weeks ago, I had my quarterly testing for dialysis adequacy, seeing that I am doing home peritoneal dialysis. It was a shock to learn my adequacy score was only about half what it was three months ago! My clinic immediately placed me on "double" the dialysis, and I retest this coming week to see if there is an improvement. I am really hoping this will show I am above the state baseline level of 1.7, now.

Wow, what a hit to my daily timeline, let me tell you! Doing manual PD, my schedule is pretty flexible, but it sure takes a lot of time each day, now. Get up, do first dwell about 8AM, drain after 3.5 hours, wait 3-4 hours, and repeat. It is difficult for me to do much physically while dwelling, so no outside work, or even walking; it's just too uncomfortable.

Thankfully, our local food bank is taking all my fluid boxes [identifying labels removed!], to help pack weekly pickups by some residents here.

Mentally, it has been a real eye-opener, understanding that my kidneys have really failed. How have you handled a change in your dialysis prescription, mentally and physically? I'd like to know!
Ginger

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Replies to "Two weeks ago, I had my quarterly testing for dialysis adequacy, seeing that I am doing..."

@gingerw I’m sorry that I don’t have any answers to your question because at present I’m not requiring any dialysis. But when I was learning about various dialysis types the people promoting PD claimed it could be done while you sleep. Is that true? If so, would that be an option for you?