← Return to PNET on tail of pancreas with numerous bilobar hepatic metastases

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PNET on tail of pancreas with numerous bilobar hepatic metastases

Neuroendocrine Tumors (NETs) | Last Active: Jan 28 4:11pm | Replies (21)
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@roseflame

Hi @lindabees ,

Thanks for your encouraging story. What did the second doctor do to erase the “heavy tumor burden” in your husband’s liver and lymph nodes? To be nearly disease free and have a 16-year survival is so miraculous. You give us all hope. Bless you

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Replies to "Hi @lindabees , Thanks for your encouraging story. What did the second doctor do to erase..."
lindabees | @lindabees | Jan 26 8:46am

Hi @donnarushing55

He had a distal pancreatectomy in 2008 during which they discovered the many liver mets. The surgeon didn’t attempt to debulk the liver but removed the primary on the pancreas. We did the watch and wait and then a brief stint on the early, low dose captem trials. Then he had radioembolization to the liver mets which wiped out nearly all of them. Then in late 2022, he had some progression so he started on full dose captem which shrunk the remainder liver tumors by about 50% and he’s now stable. (He was lanreotide during this whole time and did 3 years on Afinitor when a lymph node grew) His specialist has now taken him off the temodor in order to prevent any long term platelet damage but is keeping him on cap.

I hope your second opinion goes well!

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