Connect
← Return to Clostridium difficile (Cdiff) and worried about weight loss
Discussion
Clostridium difficile (Cdiff) and worried about weight loss
Digestive Health | Last Active: Jan 26 4:32am | Replies (59)Comment receiving replies
Omg 😭🙏🏽 I feel so alone!
I had my first c diff may 2023 then had recurrent C diff episodes about 3-4 times untill just few days ago I’m still c diff positive but on Jan 20th 2024 I finally got urgent FMT SURGERY (FECAL MICROBIOME TRANSPLANTATION)
You won’t believe it but I’ve been suffering for 4 months in this last C diff episode, im still positive as of Jan 20th, but I have been constipated since November despite having c diff. All my other c diff episodes I had diarhea…
I was treated so poorly by SCRIPPS MEMORIAl hospital in La Jolla!! I was often discharged and told to
Go get help for “anxiety” the doctors refuses to send my stool wow I had to beg a random student NP from a clinic. I finally from October 2023 till Dec 20th had to go in n out HOSPITALS for severe dehydration, finally Dec 20th I was shown positive for c diff!! With constipation of 1 BM every 3 weeks!! Imagine all of those toxins wow!!
I lost 40 lbs In under 50 days! I’m still losing, and I can’t walk much, I can’t eat or drink I suffer, I can have few sips of soup broth and I get IV fluids every week or so, and am trying to have pedialyte not with much luck. I wish for a peaceful departure from earth or from treatment from this hell 😭🙏🏽❤️ love you all, I’m very young at heart and in how I was raised, and biological clock I just turned 42 15 days ago…
Miss Armani….
Replies to "Omg 😭🙏🏽 I feel so alone! I had my first c diff may 2023 then had..."
Connect
Wow, here goes, 7 months ago I had colostomy surgery I am now wearing a bag until I die I'm 77 it's very difficult to me it's like a full-time job wearing that bag the history is 50 years of ulcerative colitis and two years ago I started with C diff I hold the record for 11 times it doesn't go away especially since you have to be on antibiotics I was on Vancomycin for a year and a half and side effects are never pretty on any of these drugs I never I've never been constipated it's always the opposite and then we come to the choice I continue to lose more and more weight and no end in sight getting better exhausted all the meds or the life saving surgery so there really is no choice because I would have died and now I get to live with this bag I'm glad I'm retired so I don't have to deal with being out in the world taking care of this bag mentally it's very difficult but it will get better I have a great support group on Facebook and you got to keep on what you're doing don't let up with these doctors all I know is the best outcome for me is no moral serrated colitis and no more C diff ever ever again because that one is a tough one remember you're a fighter keep on top of your care and ask questions and see what the long-term prognosis is for you and I say prayers for you and have a blessed day