Connect
← Return to NET in illeum, surgery or proper nutrition?!
Discussion
NET in illeum, surgery or proper nutrition?!
Neuroendocrine Tumors (NETs) | Last Active: Feb 8 9:16am | Replies (23)Comment receiving replies
Hello @sbds and welcome to the NETs support group on Mayo Connect. I see from your post that you and your husband have quite a journey with NETs. You make some very good points about early detection and treatment. Often NETs are not found right away. Many of us never had symptoms prior to the discovery of the NET.
I see that he is now completing PRRT treatment. How has he felt during this treatment? We have several members who have experienced good results from PRRT. I would encourage you to read the posts about PRRT in the following discussion group:
--Interested in Hearing People's Experience with PRRT
https://connect.mayoclinic.org/discussion/prrt-treatment/
--High Grade 2 and 3
https://connect.mayoclinic.org/discussion/high-grade-2-and-3-neuroendocrine/
If you are comfortable sharing more, I'm wondering if your husband was experiencing any symptoms prior to his diagnosis? How is feeling now?
Replies to "Hello @sbds and welcome to the NETs support group on Mayo Connect. I see from your..."
Connect
He was 57 when His journey with major health issues started 1/20/2015 with a 100% blocked LAD artery(widow maker) that he survived with an emergency stent surgery. Does have heart failure due to the heart attack. Then on 12/28/2015 he experienced pain in his lower Ab had CT did not find anything On 9/12/2018 had black stools for a week called Doctor had to see Doctor immediately did a stool check and no blood was detected. Then 9/5/2019 admitted to hospital cause black stool again. Blood was detected a endoscope was done and a colonoscopy nothing was found. No CT was done. Doctor thought cause was from Plavix aggravating stomach. On 11/20/2021 had severe stomach pains after hours pain went away. On 1/22/2022 pain was so severe ambulance called and taken to ER. That’s when CT was done and cancer found. The cancer Doctor said that he has had the cancer for many years. So that’s our journey and hopefully the PRRT works staying positive