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Neuroendocrine cells in Breast and Lungs DIPNECH

Neuroendocrine Tumors (NETs) | Last Active: Sep 16 11:26pm | Replies (35)
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@mlbschuler

I was just diagnosed with DIPNECH, what can I expect?

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Replies to "I was just diagnosed with DIPNECH, what can I expect?"
grec | @grec | Jan 26 7:25am

I have that too. I am not taking anything for this at this time. It is scary. I was told it was very slow growing. Mine is in my lungs.

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mlbschuler | @mlbschuler | Jan 26 7:40am

Yes, in the lungs, pretty scary, but slow growing, hopefully it stays that way! They changed my inhalers and I am to have CT scans twice a year for now.

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Justin McClanahan, Moderator | @JustinMcClanahan | Jan 26 9:10am

Hello @mlbschuler, I moved your discussion and combined it with an existing discussion titled, "Neuroendocrine cells in breast and lungs - DIPNECH" - mayoclinic.org/discussion/neuroendocrine-cells-in-breast-and-lungs-dipnech/.

@californiazebra, @grec and @josey1 have all discussed having DIPNECH as well and may be able to share some of what they have experienced during their journey with the diagnosis.

@mlbschuler, have treatment options been discussed with you, or are you in a wait and watch approach?

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