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DiscussionNET in illeum, surgery or proper nutrition?!
Neuroendocrine Tumors (NETs) | Last Active: Feb 8 9:16am | Replies (23)Comment receiving replies
Replies to "lots! And trying to get my oncologist or surgeon to call is not working! I have..."
My husband had to have an open surgery because his 3mm tumor was deep in his gut where the small and large intestines meet. He had a great surgeon and by having open surgery the surgeon could feel all the intestines and found 8 more small lesions plus he had lymph nodes and 22 lesions on his liver removed and gallbladder too. Recovery was 2 weeks in hospital. He didn’t have the option to have laperscopic
Here is a discussion group that might be of interest to you, @mimisayhi
--Need help with Diet After a Hemicolectomy
https://connect.mayoclinic.org/discussion/need-help-with-diet-after-a-hemicolectomy/
While this surgery was a bit different from the one you will be having, by reading the posts, you can connect with others who have had ileum surgery. As you read the posts, feel free to ask questions.
For those of us who have surgery for NETs, one of the most important things we have found is to plan on eating small, smart meals. This would mean not eating just three meals a day but eating several times a day. Eating "smart" means foods that are easy to digest (not creamy or foods high in fat and generally not raw fruits and veggies).
If you ask your doctor for a referral to a registered dietician at the hospital where you will have surgery, this would be very helpful to you. I've had three surgeries of the upper digestive tract for NETs and have met with registered dieticians twice, and they have offered marvelous support and suggestions for "eating smart."