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Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for dedhambeth
dedhambeth | @dedhambeth | Jan 23, 2024
In reply to @annbk "I recently had my first colonoscopy. When I read the notes, I was surprised to read..." + (show)
Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I’d love some recipes!

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GISUE | @slangston | Jan 23, 2024
In reply to @dedhambeth "I’d love some recipes!" + (show)
Profile picture for dedhambeth @dedhambeth

I’d love some recipes!

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Would really like to see your recipes!

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marylisa | @marylisa | Jan 24, 2024
In reply to @annbk "I recently had my first colonoscopy. When I read the notes, I was surprised to read..." + (show)
Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I'd also like to see the recipes. I'm vegetarian so would like recipes without meat if you have them. I include a lot of the grains like farro and amaranth and really like them.

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ssnlsh | @ssnlsh | Jan 24, 2024
In reply to @annbk "I recently had my first colonoscopy. When I read the notes, I was surprised to read..." + (show)
Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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Yes to recipes! I’ve had chronic constipation for as long as I can remember.

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2 replies
Profile picture for GISUE
GISUE | @slangston | Jan 24, 2024
In reply to @annbk "I recently had my first colonoscopy. When I read the notes, I was surprised to read..." + (show)
Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I went to a very good health food store and they did not know anything about
amaranth. Where do you purdhase it and do you have guidelines for it's use. Thank you for your information!

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dedhambeth | @dedhambeth | Jan 25, 2024
In reply to @annbk "I recently had my first colonoscopy. When I read the notes, I was surprised to read..." + (show)
Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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I buy a granola with amaranth and other grains in it. Purely Elizabeth Ancient Grain Granola

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1 reply
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heyjoe415 | @heyjoe415 | Jan 25, 2024
In reply to @ssnlsh "Yes to recipes! I’ve had chronic constipation for as long as I can remember." + (show)
Profile picture for ssnlsh @ssnlsh

Yes to recipes! I’ve had chronic constipation for as long as I can remember.

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How have you been treating your CIC? Thanks!

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ssnlsh | @ssnlsh | Jan 25, 2024
In reply to @heyjoe415 "How have you been treating your CIC? Thanks!" + (show)
Profile picture for heyjoe415 @heyjoe415

How have you been treating your CIC? Thanks!

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Motility Activator 3 in a.m.+2 bedtime, Mirilax twice daily, magnesium, and Atrantil, digestive enzymes, Biocidin for GI issues.

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1 reply
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ssnlsh | @ssnlsh | Jan 25, 2024
In reply to @dedhambeth "I buy a granola with amaranth and other grains in it. Purely Elizabeth Ancient Grain Granola" + (show)
Profile picture for dedhambeth @dedhambeth

I buy a granola with amaranth and other grains in it. Purely Elizabeth Ancient Grain Granola

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Does that work well? How much and how often?

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1 reply
Profile picture for heyjoe415
heyjoe415 | @heyjoe415 | Jan 25, 2024
In reply to @ssnlsh "Motility Activator 3 in a.m.+2 bedtime, Mirilax twice daily, magnesium, and Atrantil, digestive enzymes, Biocidin for..." + (show)
Profile picture for ssnlsh @ssnlsh

Motility Activator 3 in a.m.+2 bedtime, Mirilax twice daily, magnesium, and Atrantil, digestive enzymes, Biocidin for GI issues.

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Thank you!!!!!

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