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familial adenomatous polyposis (FAP)

Colorectal Cancer | Last Active: Feb 4 4:06pm | Replies (12)
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@mjaramburo

Hi Sotia,
My sister was diagnosed with FAP, she had colectomy at age 35, then it develop into cancer and passed at age 52. She has 3 children, 2 of whom was also diagnosed with FAP, one already passed. The surviving son has colectomy 12 years ago , but on his latest follow up endoscopy ( 2/23 ) a number of polyps is seen around his doudenum. I wonder if there is any new treatment available like gene therapy or chemoprevention that you are aware of, any trials maybe at Mayo Clinic ? Appreciate your help very much.

Jane

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Replies to "Hi Sotia, My sister was diagnosed with FAP, she had colectomy at age 35, then it..."
Colleen Young, Connect Director | @colleenyoung | Feb 4 4:06pm

@mjaramburo, I'm sorry for the losses your family has experienced due to FAP.

According to Mayo's website https://www.mayoclinic.org/diseases-conditions/familial-adenomatous-polyposis/diagnosis-treatment/drc-20372446
Potential future treatments
Researchers continue to evaluate additional treatments for FAP. In particular, the use of pain relievers such as aspirin and nonsteroidal anti-inflammatory drugs (NSAIDs), as well as a chemotherapy drug, are being investigated.

To find out if there are current FAP-related clinical trials at Mayo Clinic, you can contact Mayo research at:
CANCER-RELATED CLINICAL STUDIES QUESTIONS
Phone: 855-776-0015 (toll-free)

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