Replies to So when he told you to go to the ER immediately, did you go? If so,…

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Kidney & Bladder | Last Active: Jan 25 1:08pm | Replies (9)

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@m1rmiller

So when he told you to go to the ER immediately, did you go? If so, what did they tell you? I was suddenly diagnosed with End stage renal disease and was able to stay stable in that condition for the next 10 years by carefully eating to results of my blood labs. Try to get all of the test results they have and use that to adjust your eating around your lab results. I had high potassium so I tried to cut way back on the foods with high potassium, for example. Ten years in End stage and I never went on dialysis. You can't necessarily control everything, but you definitely can have a measure of control. Keep posting here and let us all know how it's going

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Replies to "So when he told you to go to the ER immediately, did you go? If so,..."

mrainne | @mrainne | Jan 25 9:12am

Hello, I'm near eGFR 20 which would put me in the transplant category. I have not reached it yet. I'm on a 95% vegetarian diet, careful with salt and potassium. My first cousin has also lived with ESRD for over 10 years without dialysis. And a very comfortable life as well. No symptoms to speak of, her blood work, creatinine, keeps her in that stage. She eats very little meat protein and watches her salt and potassium carefully.
May I ask what your numbers are? eGFR, creatinine, proteinuria (?). There are so many factors that play into how serious kidney disease is.
I have nephrogenic diabetes insipidus, which is a rare disease. My urine is always very clear which means my kidneys are not cleaning my blood very well. But I have no noticeable symptoms (now at least).
Kidney disease is mysterious in my opinion. My PCP has a few patients who refused dialysis and are living quite normally in "ESRD." I mean for years! I have an appointment with my nephrologist next week. My PTH is high (315), so I might have to take medicine for that.
My big concern is infection or virus illness. I just finished my shingles vaccine. I'm so careful washing my hands and cleanliness.

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