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DCIS breast cancer?

Breast Cancer | Last Active: Feb 15 5:37pm | Replies (204)

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@danielad

@sue417 - Dear Sue, this must be so very upsetting! There is the lengthy wait, and then you don't have any reports! I am so sorry you are going through such issues! Yes, you should ask each doctor, but also your oncology coordinator, and the hospital records department.
Can you use the Patient Portal?

Sue, I am not familiar with the Health System in Canada. Can you tell me if your oncology coordinator is with you at each appointment? Does she take notes for you? Can she? Does she go over the main points that were addressed during each appointment?

In the US, we have Nurse Navigators; however, their job is to help patients "navigate" (understand and use) the health system (as a whole) through each phase of their care. This is relative to that particular hospital system/medical center.
However, while the Nurse Navigator will help you through the various phases of your care, they don't accompany you to any appointments.

I truly appreciated this service. Initially, I had no idea what to do, who to see, or where to go! It was very calming and absolutely helpful.

Does your oncology coordinator do any of above, aside from coming with you at each medical appointment?

HUGS!

D.

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Replies to "@sue417 - Dear Sue, this must be so very upsetting! There is the lengthy wait, and..."

Hi
The co ordinstor does not take notes but she is very good and I can call her anytime with questions