Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 2 days ago | Replies (6021)Comment receiving replies
I was diagnosed with peripheral neuropathy. I went to a doctor that specializes in treating neuropathy. He did a treatment on my legs. It sort of helped but I’m a senior citizen on a very limited income and couldn’t afford the apparatus required to do the treatments at home. I also had a TKR in November and am having a feeling around my knee and behind my knee like there is a tight band around my knee. It isn’t above my knee it’s right on my knee. I also have had rods and screws put in my lower back and some kind of surgery on my SI joint. I am in horrible pain all the time. And I am a caregiver to my husband who has kidney cancer. He had his right kidney removed 20 years ago because of cancer and now it’s in his left kidney. He has decided to have his kidney removed and to go on dialysis. Other than all of that, we are fine. We both are trusting God through all of this.
Replies to "I was diagnosed with peripheral neuropathy. I went to a doctor that specializes in treating neuropathy...."
Hello @psmlford817, Welcome to Connect. I know it has to be difficult to be the primary caregiver for your husband when you have significant health issues of your own that are causing so much pain. I haven't had the tight band feeling around my knee with my TKR but others have posted about it in another discussion that you might find helpful:
--- Tight IT band after TKR: Does this tightness go away?: https://connect.mayoclinic.org/discussion/tight-it-band-after-tnr/.
The Foundation for Peripheral Neuropathy has a list of treatments that you might find helpful on their website here - https://www.foundationforpn.org/treatments/.
You mentioned the treatments at the doctor specializing in treating neuropathy sort of helped but it costs too much. That sounds similar to my experience when I first looked into a neuropathy clinic and what first brought me to Mayo Clinic Connect trying to find some answers. Have you discussed your pain with your primary care doctor to see if they may have some suggestions to help with pain relief?
I have the same ~ after going to numerous doctors and having all test run just to hear, we cannot pinpoint what you have peripheral neuropathy maybe~
I have found a neuropathy doctor/chiropractor which has some interesting information. He wants me to go on a plan which sounds good but man it is expensive.
I do not understand why insurance will not cover this.
It seems to be my only option to heal but once again insurance says no
Connect
I also have restless leg syndrome and that makes my neuropathy worse and my knee. At the end of the day I can hardly walk at all.