Ray,
I am aware of the Peripheral Neuropathy Association and donate to that foundation each month. There is another foundation called Dysautonomia International that focuses on autonomic dysfunction, with it seems a focus on POTS. However, there is not a foundation that I am aware of that focuses specifically on small-fiber neuropathy and related autonomic dysfunction and the immense pain and quality of life impact that it has.

The prevalence of SFN is, I theorize, far higher than posited by the medical establishment. There are studies demonstrating that many people diagnosed with fibromyalgia actually have SFN. This was proven via punch skin biopsy of the study participants, where 40-50% came back with reduced intraepidermal nerve fiber density (IENFD), the gold standard for a definitive SFN diagnosis. Moreover, SFN is known to impact the GI tract and the heart, amongst other organs, yet many gastroenterologists and cardiologists do not suspect SFN when patients present with cryptic symptoms. Finally, there are reports of COVID causing several SFN cases, and many long-COVID studies are ongoing. I suspect that some people suffering from long-COVID have developed SFN. Given all of this, I do wonder whether a more focused foundation would get us closer to valuable research and therapeutics as compared to a foundation covering PN generally.